Saturday, 7 May 2011

Papageno is experiencing his first rain since he started going outside. He is confused - his little face looking up at Paul asking why someone has made our patio all wet! He is not keen on getting his paws wet. He also didn't like the thunder - he is very frightened of strange noises. Yesterday it was the shredder! He has now come in - obviously not impressed with rain. I bet the gardens are happy with the rain though.

It was lovely to have bible study yesterday although a few ladies were missing. It is good to catch up with everyones news.

My dreams recently have been very vivid and like a scrambled mess of people and places - I am thinking this might be a side effect of the chemo. When I wake I can sort of remember that my dream was about certain things but not the detail which is quite disconcerting. My fingers are also quite numb which makes writing or even typing on the computer quite tricky. And my feet are now numb all over which feels very strange when you walk. What strange side effects this drug has.

Today dialysis on my own - I have the last of the dvds I bought recently to watch. Tomorrow we are hoping to go and see the azaleas at Saville Gardens.

Friday, 6 May 2011

At last 2 blunt needles in dialysis - maybe we are getting there after 3 1/2 months. The nurses told me it would take about 2 weeks! Dialysis went quickly yesterday with Kit as we discussed life and weddings!

Today ladies who lunch and bible study - I have missed our Fridays.

My head is feeling quite odd as although my head is shaved there are a few areas which are still growing and feel prickly. I think I may need to shave those bits as it will look very peculiar with little patches of growth. A bit Gollum like from Lord of the Rings!!!!! Not a good look. I am feeling so much better and wishing I didn't need any more chemo - ho hum! Only 4 more to go still sounds a long way to go. Next chemo next Wednesday and then I will be half way. Wish you could take tablets to counteract the tiredness. However I am so grateful that it doesn't make me sick and that my taste buds have stayed ok. I am putting on weight still which is great - although mustn't put on too much or I won't fit in my dress for the wedding!!!!

Thursday, 5 May 2011

New day, new possibilities! I had a good day yesterday and felt almost normal. I spent the morning tidying my desk - yes you heard me correctly a whole morning. It was so good to be able to manage such a long time being busy and not become too exhausted. Having said that I then slept for 2 hours in the afternoon and then most of the night! My desk is almost clear and looks very good.

Today I am hoping to visit the farmers market with Kitty before going to dialysis. Looking forward to nice flan for tea if they have them. Hurrah for shopping!

Wednesday, 4 May 2011

Another sunny start to the day. The weather has been so lovely recently - like a present. I love spring time. Today I am hoping to tackle my desk which is covered in paper that needs sorting - how does that happen?!!! Yesterday I managed to tidy Ben's room a bit which felt really good. I am feeling much better after the transfusion and as the chemo leaves my body - hurrah. A whole week until I have the next chemo which is great.

Yesterdays needling went ok 1sharp needle and 1 blunt so we are getting there - maybe. There is talk of removing my Tess line if my fistula continues to stay ok. We shall see!

Tuesday, 3 May 2011

Early start to the day with physio at 8am. I do like going to physio as it always makes me feel so much better stretching the muscles in my shoulder and back. I wish i could have it daily!

Yesterday was a pootling day with not much achieved although I did manage to cook tea for Ben and I. Chloe left at tea time and I miss her.

I am feeling so much better with the blood. I have managed to have a bit of a clear up in Ben's room which feels very good. Dialysis with D today.

Monday, 2 May 2011

We had a really lovely day yesterday with Joy, Matt and Talia. The food at the restaurant was really lovely and enjoyed by all. We also had great service and very cheerful waiters. We filled the day with chatting it was great. Before going I managed a bit of tidying and some knitting in the evening - so a very productive day.

Today Chloe is off out with Joy to buy shoes for the wedding and Paul is off to London for the opera. It is hard not to feel jealous that they are able to be going out to do lovely things. But hey ho I need to make the best of my day here. Maybe a bit more tidying and some more knitting. Maybe some time in the garden - I need to plan my pots.

Sunday, 1 May 2011

Woke this morning feeling much better and so grateful to whoever gave their blood. I had 2 units yesterday after 10 phone calls! It is a bank holiday I was told and there are no Drs who can authorise the blood transfusion! Eventually my patient nurse managed to get a Dr to say yes. I am feeling much better for it today. The needling went well after a little blip and we used 2 needles. I didn't drop my BP too much and I didn't bleed too much - hurrah!

After a slow start to the day we are going out to lunch with Joy, Matt and Talia to celebrate the boys birthdays. Thankfully with more energy I will enjoy it.

Just 2 more days with my girlie - ho hum. I so love having her home. We had a lovely visit to the new stitchery shop yesterday and bought lots of bits and pieces for projects mainly for her but a bit for me. It was fun to be out and about. I am really struggling again with not being able to do things - I can't wait to have a normal (or as normal as is possible) life again. It has been such a long time since I was able to go for a walk, do my ironing, shop for a weekly shop, hoover my house, change my bed linen, make a cake, etc....... Please don't take your lives forgranted, appreciate all that you can do even that which seems mundane. You never know what is around the corner. It is nearly a year now since I was diagnosed and my life was turned upside down - I can't quite believe what this year has held. I am so grateful for all of you who have supported us and held us in your thoughts and prayers. Without you this would have been a very lonely journey. I am sorry it has been so long.