Monday, 6 June 2011

Today is the day for line removing - hopefully. I will be so glad when this is done. It was the most horrible procedure when it was put in but hopefully it will be much easier to get it out. I have been looking at swimming costumes so will order one when I come home and am line free.

Today physio, then coffee with a friend and then to hospital for line out.

Yesterday was a peaceful day - didn't do much at all. The tiredness seems to fill every cell in my body. Hope to start feeling better soon. I expect I will need a transfusion either this week or next.

I am planning an end of treatment party for September - more details to follow. It is fun thinking about it. Hopefully by then I will have much more energy to organise a party.

I will update you later when the deed is done!

Sunday, 5 June 2011

Update I have a lift thank you
Yesterdays shopping trip went well. We managed to kit Ben out for the wedding and for school - just shoes to sort out. Also we managed to get some summer things too. It was so lovely to spend time with him. Hopefully we will do more when his exams are over. Dialysis was yuck - my BP dropped almost as soon as I started and I also had chest pain. In the end they hardly took any fluid off - could be because of the hot weather. We have started to discuss me needling myself - slightly scary. I managed to watch as the nurse needled me yesterday and hopefully I will try soon.

I am to have my Tesio line taken out on Monday at 1.00 as long as my bloods are ok. It seems amazing that I will then be line free. It means I will be able to have a shower after a year of no showers and go swimming. Something I can't wait to do even though I didn't used to go swimming very much before but once you have been told you can't all you want to do is go!!! I will need to get a new swimming costume and a new prosthesis that doesn't hold water. However with my low haemoglobin I am not sure that I will be able to swim very far. But still it will be lovely to be able to go.

I am in need of a lift back from the hospital tomorrow. It will be at about 2.30 unfortunately I won't know the exact time as it will depend how long it takes for me to stop bleeding!!! Always a movable event! Please let me know if you can help. Thank you!

Today I plan a quiet day before my busy day tomorrow. I have physio followed by coffee with a friend and then my Tesio line out.

Saturday, 4 June 2011

Saturday has arrived. Friday done. I was so tired yesterday but it was lovely to see Joy and Talia and Chloe came home. Ed has finished exams so Chloe came home to study. She will be home for 7 weeks in 2 weeks time. However in this time she will revise for exams and take exams and then travel back and forwards to Oxford for 3 weeks before then going to Uganda. What a busy girlie! My swing seat is SO lovely. I spent most of yesterday curled up on it. We now need lots of sunny days.

Today Ben and I are going shopping in Reading (with wheelchair) for a new suit and for summer clothes for him. It will be interesting to see how wheelchair friendly Reading is- my guess is that it is not! It will be lovely to spend some mummy and son time - not something we have done much of recently. Chloe will be at home revising and Paul doing jobs. I will then have dialysis - probably watch a film or try and catch up on the Springwatch that I haven't watched. I am so grateful for my computer.

I hope you all have happy weekends planned full of family and laughter.

Friday, 3 June 2011

More than 25,000 times people have looked at my blog - wow! That is amazing that people care enough to be interested in my life. Thank you!

I am battling through this last lot of chemo - struggling with the side effects but aware that this is the last time I will do this. I feel like I have been punched all over.

Yesterday was lovely - coffee with friends and a cuddle with the most gorgeous 5 week old baby. He still pulls his little legs up and fits perfectly into your arms. All the potential to be anything he wants in that tiny little body. It was so lovely to sit in R's beautiful garden with the birds singing around us and roses blooming spreading their sweet scent into the air. A perfect morning. Dialysis was OK - more talk about having my line out but still no date - ho hum!

Today - a quiet day coping with side effects. However I will be able to sit in the garden on my beautiful new swing seat which arrived yesterday. Perfect timing.

Thursday, 2 June 2011

Last chemo done and my PICC line taken out - yippee! It was a long day yesterday. They asked us to come in at 11 but actually didn't start my chemo until 2.30 so a lot of sitting around waiting. It was SO busy in the ward. However they were able to take out my PICC line which was wonderful. I am off to have a bath with 2 arms for the first time in a year. It was lovely to see Josh and Debz if only for a few minutes. Debz has moved into their new flat. This will be their first home together - how exciting. It was lovely hearing Josh talk about hoovers and mops etc....

Today coffee with friends and then a friend taking me to dialysis.

Wednesday, 1 June 2011

So here we are - last day of chemo - hopefully ever! It feels very strange to be at this point. I still have to have the chemo and the next few weeks of yucky side effects but then it is done - over. Then I start the scary part of cancer - on my own! People liken it to coming home from hospital with your new born - on your own. There won't be weekly blood tests and appointments with Drs. In fact I won't now see the oncologist for 6 weeks. I begin this part of the journey after treatment. With breast cancer you are now never considered cured. It is something I will live with for the rest of my life. I will have to learn to live with niggles always causing concern and fear that it has returned but this will be part of my new normal. Dr C warned me that it takes a year to 18 months to recover from chemo but thats OK I have the rest of my life to recover. I plan to continue with my blog for at least the next 6 weeks - until my appointment which will be the week after Josh's wedding. Then we shall see. I am hoping to have a party in September to celebrate - life! I hope you will all come.

Thank you again for all your thoughts, prayers, texts and messages. I have felt surrounded by your love.

This verse has been on my heart -

'For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future' Jer 29 v11.

I am in the hands of the Father who has plans for me and for my family. He knows the number of my days and he is in charge of them. I trust him.

Yesterdays show shopping went well. I have a beaustiful pair of shoes and a little handbag in just the right colour. The handbag was the tricky part. I had a lovely time shopping with D. Dialysis went well and I finished watching Avitar which was very beautiful although I could have done with out all the fighting. Needling went well with a new nurse. At last I feel like we are getting there.

Today we might get to see Josh who is coming home with a van to pick up stuff for his new flat which Debz moves into today. What fun for them to begin building there first home together.

I am just waiting for the phone call to say my chemo has arrived.

We have had money taken out of our account for olympic tickets - looks like it might be the rowing tickets. We shall see! It will be lovely to go and see rowing but I did so want to go to the stadium. Oh well at least we can watch it on the television.