Wednesday, 6 July 2011

3 days. So close now.

Yesterdays dialysis was fine. I spent it with D and Chloe which was lovely. We chatted all things wedding! I got my needle in completely - in the wrong place! Lined my machine with almost no help just reassurance.

Today is a sorting day - Chloe and I are going to try and sort out cravats which have somehow got muddled. Then ironing and more fudge making. We made the second batch of fudge last night which has turned out well. Maybe 2 more lots to go. This evening I am going to have my nails done for the first time and I am hoping to go to housegroup for the first time in ages. At some point I need to get my packing sorted as i have dialysis tomorrow and Friday and then we go. Yippee!!!

Tomorrow will be my last post before the weekend which looks like this:

Friday
  • dialysis at 7am
  • finish dialysis 11.30ish
  • lunch
  • journey to Brighton
  • explore hotel and walk on beach
  • snack
  • wedding rehearsal
  • family meal with Debz's family
Saturday
  • breakfast
  • getting ready
  • snack
  • 1pm wedding service
  • 3.15 arrive at reception
  • photos
  • 4.30 - wedding breakfast
  • 7.30 evening reception
  • bed exhausted but very happy i should think!
Sunday
Family breakfast
Maybe sea walk
Lunch
Back to Wokingham and Papageno

Monday
Dialysis with Mark
Down to Southampton to stay in hotel with Chloe before her exam

Tuesday
Lovely breakfast
keeping Chloe calm before exam.
Home to Wokingham

Wednesday
sleep!!!!! and look at photos to remember lovely day

Thursday
Dialysis with D

Friday
Ladies who lunch and Bible study

Saturday
Dialysis

Sunday
To London to see The Railway Children

Wow! What a busy time. I hope I have enough energy to cope with all that. Who would have thought that I could even contemplate doing all this until recently. I am so happy to be doing life and doing it well. I am grateful for each new day and each memory I am making. Thank you for your thoughts and prayers. Must remember to charge the camera battery!

Tuesday, 5 July 2011

4 days - oh it is getting close now. Need to make sure all the washing is done and everyone has everything they need. Must remember to charge the camera batteries.

Yesterday was Ok. Lovely to have coffee at school. It feels strange now to be back there but not to know what is going on. It is a lovely staff room full of chatter. Lovely to see Joy too. Chloe's exams seem to have gone ok. Just one to go now.

Today dialysis with D.

Monday, 4 July 2011

5 days.

Yesterday was lovely church with a challenge to pray together. Picnic - nearly in the sun but not quite! Lovely to chat together. Paul had made a very lovely picnic. Then Chloe and I made fudge - at last. Only 175 pieces to go!

Today I am going for coffee at school and a chat about work. Then seeing Joy and Chloe will be back this evening from Southampton having completed her first exam day. Today is the day for list making to make sure we have everything for the weekend.

I am slowly feeling stronger. Each day I have a little more energy and seem to be able to do more. However by the evenings I am usually exhausted and I am sleeping well. The movement in my arm is very slowly improving and I can now hoover a bit and hang the washing on the line. I continue with physio which does help. I am still randomly sick which is a pain but connected to the renal part of the disease I think. I continue to be impatient to be well but am grateful that I can do so much more now.

Please see post below for photos from dialysis last week.

Sunday, 3 July 2011





Photos Kitty took last week during dialysis and when we came home on my swing seat.










6 days. I hope Debz and her friends had a great Hen night last night. I am sure I will hear all about it later when Chloe wakes up. In 6 days time I will have a new role - that of a mother-in-law. That sounds quite old!

Yesterdays breakfast was great. I think we should have one every Saturday before dialysis. Dialysis was ok I enjoyed the tennis and although my bp was still quite low when I arrived it didn't drop too low. Thankfully.

Today church and a picnic. Paul has bought yummy things for us to eat. Hopefully Chloe and I will have another attempt at fudge before she goes to Southampton for her exams tomorrow.

Saturday, 2 July 2011

7 days! Goodness me I am already tearful thinking about next Saturday and I still have 7 days to go. What will I be like by next Saturday? Its thinking about this time last year when I was wondering if I would see any of my children married. I am SO glad to be here and to be getting better and able to enjoy it. Thank you for all your thoughts and prayers surrounding this. Debz and Josh seem to be doing a great job organising everything.

Yesterday was a lovely day which started with breakfast in the garden with Kit. All days should start like that - lovely. I managed to tidy a bit and Kitty hoovered so my house is looking wonderful. Ladies who lunch and bible study was great. Chloe arrived back and we caught up on news. I also managed a big pile of ironing - I must be getting better!

Today - ladies breakfast - lovely followed by not so lovely dialysis. We shall see how I manage with higher blood pressure. Hopefully I won't need intervention this time. Looking forward to the tennis.

Friday, 1 July 2011

8 days - wow it is getting so close. And it is now July - where did June go? The count down is now on - Ben has no shoes, lists need to be made, fudge needs another attempt...........

Dialysis was a bit yuck yesterday as my bp dropped and being given fluid didn't work so they gave me something called gelofusine. This was like magic and made me feel better really quickly - thankfully as i was feeling very rubbish and longing to stop. The nurses contacted my consultant who has stopped my bp medication to see how I get on without it.

Today - breakfast with Kit, bit of tidying and washing and then ladies who lunch and bible study. Chloe back from Exeter this evening - hurrah. She is off to Debz's hen do on Saturday. Wish I was going too but just wouldn't cope. Looking forward to tennis this afternoon. Come on Andy!

What a disjointed post - you can tell my mind is all over the place. Hope you all have exciting weekend plans.