Friday, 12 August 2011

So here we are Friday again and what a busy week. Last Saturday Chloe left for Uganda and by the wonders of Skype we have chatted most days - amazing. I can't quite get my head around that. She is doing well and enjoying her experience although I think she is very tired. Hopefully she will get to rest a bit at the weekend. She has seen her first deaths - the first one on the first morning. And seen how important preventative medicine is in this country. Lots of high blood pressure and heart disease which is only discovered because of other diseases.

Ben left for Turkey on Wednesday and unlike Chloe we have heard nothing - not even the phone call we had asked him to make to let us know he had arrived safely - ho hum!

I had my fistulaplasty on Monday which was quite painful despite sedation. It looks likely though that quite a lot of the sedation ended up in my tissues and not in my vein by the size of my arm and the bruising afterwards. The good thing however is that it has been successful and the pressures are now up to 1,900 from 400 so that is good. The stitches came out yesterday and were quite tricky to remove so I am now steristripped and plastered to reduce the scarring - ho hum!

Dialysis has been ok this week although I continue to be able to only needle the bottom needle. Think I will discuss making a new buttonhole next week.

Today I am seeing the rheumatologist to discuss whether I need to go back on methotrexate. I am hoping that we will be able to hold off for a bit longer as it makes me feel sick. Also think that it might be dialysed out by the machine so may mean I need to have a different drug anyway. I do have some tightening of my skin on my hands but it is not too bad and my joints feel ok.

Still no results from bone scan - I am assuming this is good news as if it was awful I would have heard by now - I hope! If no news by Monday I will ring again.

So the week ahead holds a visit to see Josh and Debz in their new flat, coffee with friends, shopping in m&s and most exciting of all next weekend i am going on an adventure to the seaside for a night away. Hoping for lovely sunshine so that we can have a paddle!

I continue to work through Job in my bible study. I think it is good to realise that however hard we find it there are no clear and cut answers to suffering and why God allows those he loves to go through hard times. The most important thing to grasp is that it is not about knowing why it happens but it is about knowing the God who knows why it happens. He is in charge and he knows and that is enough. It is good to know that God is unchanging - he always loves, always is good, always uses situations for our good, always is in control, always powerful, always trustworthy, knows all things, never leaves me. And that is enough. I hope it is enough for you too.





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