mmm 2hour wait for my scan yesterday! With no explanation or apology until I asked what was happening when 2 patients who came after me went in before me. I had a long winded explanation about lists and in patients - which didn't seem to apply to these people. I don't at all mind waiting especially if people are very ill and need seeing urgently but a polite explanation and apology would be nice. Or even a suggestion that I could go and get a coffee as I would be waiting a while. They told another patient not to leave in case he was called in! He waited an hour! OK rant over!

The results of my scan were good and showed that I have 2 possibilities for fistulas in my right arm should I need one. That is good news and hopefully that is now the end of my fistula story!

Last night I finished the book 'Mum's List' by St John Green. It is a book about a list that was written by a lovely Mum, Kate who died of breast cancer at 38 when her 2 little boys were 4 and 5. When she was very very ill she began to write a list for her husband and boys. It included all sorts of things she wanted them to do together after she had died and instructions for her husband about bringing up the boys. She included lists of her favourite things so that they would know when they were grown up what she liked and enjoyed. It is a very poignant book but also very uplifting. She wanted them to live life to the full even giving instructions to her husband to love again. What a precious thing for the boys to have as they grow up.

Today is a bitty day - some tidying, collecting prescriptions, shopping, bit of cooking and lent group this evening. I will try to pace myself so that I get everything done with out wearing myself out. I am managing to do more in a day but still try to do that bit extra that pushes me over the edge. I still really struggle with evenings. I often go to bed at 7 because I am too tired and my joints have had enough! Although my autoimmune disease remains stable the damage to my joints means that at the end of a busy day my knees, ankles, wrists, hands etc... ache. I think that will always be the case now. However I do manage to knit or sew in the evenings for a little while.