Yesterday may have been my very last renal clinic appointment. That is amazing! I haven't had all my blood results yet - waiting for a phone call from oncologist but the ones I have had are fine. Well obviously they aren't fine - but are fine for me! They show stable kidneys at about 20%. My liver function is fine and the indicators for inflammation are fine (that would show up if I had active autoimmune disease). So now 2 more monthly blood tests and if they are ok I won't need to go back to the renal clinic. Her view is that unless anything else happens my kidneys should remain at this level and if I have any problems my other consultants or my GP will refer me back to her. She advised me to stay away from 'bugs' though as that could push them over the limit. But thankfully no more injections in my tummy - yippee! If there are any Lance Armstrongs out there I have a fridge full of Epo!!!!!!
I think this now means that I will have to try adjusting my blood pressure tablets to sort out the sickness and tiredness. Ho hum! It also means I have to do this with a new GP as my GP is having a baby (very inconvenient of her) I think I also have to accept that this is my new life and to get on with it and stopping moaning! I went to visit the patients and staff at the dialysis unit when I went to get my blood done. They are always so delighted to see me, it is lovely. It also is a good reminder of where I have come from and that for some people it is their lives with no chance of recovery. I am so thankful not to have to be doing dialysis and now no more renal.
Today coffee with a friend and some making.
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