Saturday, 4 May 2013

Tiredness

So the skies are a little grey - I was hoping for sunshine but the weekend beckons. Paul and I are off to Stratford for a birthday celebration for Paul. We are going to see As you like it and eat in the beautiful Rooftop restaurant, followed by a night in a hotel and (hopefully) a lovely breakfast and a long lazy lunch. As ever I am hoping for enough energy to cope. We went last year and spent 2 very busy days in Stratford. I am aware now that my energy reserves are less than they were then. I do need to have more stopping time and on Monday I know I will be wiped out. Somehow I need to get my mind around the tiredness aspect of my illness as it still creeps up and surprises me. On Tuesday I went to Bookclub which was great fun and I really enjoyed my time with the ladies. But on Wednesday I tried to do too much (which wasn't much at all) and I was exhausted. Ho hum! A morning of shopping with Chloe on Thursday wrote me off for the rest of the day. I know I should be appreciating what I can do and not moaning and groaning about what I can't do but I still struggle with it. I am now writing rest days into the calendar but I am doing them with a grumpy face! It is hard to explain what it feels like when I get tired - it is as if my bones are exhausted. Every bit of me aches from my fingers to my toes and I feel quite sick. Despite this moaning I am SO thankful I can do all that I can. I think I need to learn contentment - with my new normal and look for joy even in the stillness. I have been given much - and I am thankful.

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