Saturday, 5 June 2010

Hurrah we have internet!
I am feeling much better this morning - glad for new days.
I am beginning to get my head around the week ahead.

Monday - bone scan 9.30 - 12.30
Tuesday - PICC line fitted ( into my arm for drugs) 2.00
Wednesday - MRI scan 2.00
Thursday - Chemo starts 12.30

I would appreciate your prayers that the bone scan is clear and that all goes well fitting the line on Tuesday. Also that I tolerate the chemo well and cope with the side effects.

Look out for funny stories about Wednesday that will involve a hole and a 'feeder'. Also a cold hat on Thursday which I will try out while I have my chemo to help conserve my hair. I am not yet convinced that I will do this as it seems a lot of hassle to sit with a very heavy, very cold hat on your head which may or may not work. We shall see. Thinking that pretty scarves and bandannas are the way to go.

Hope you all have good weekends full of sunshine and laughter.



Friday, 4 June 2010

I have had a rather yucky night with my first migraine in 5 years. Ho hum! Suggestions have been made that it is preparing me for the chemo! At least I was able to practise using my bucket!

So today has been a slow day. Coffee with a friend and an afternoon snooze. We are having lots of problems with our Internet so texting is probably the best way of getting hold of me at the moment or of leaving a message. A man is coming to fix it on Tuesday.

I feel a bit like this is all a dream and maybe soon I will wake up and it will be over. However when I feel like that I remember that the creator of the universe is holding my hand and we are in this together.

Ben is sitting beside me making a foot - as you do! Or maybe as he does. Chloe is avoiding revision and chatting with us. What a joy my children are. Paul has gone in search of the internet!

Thursday, 3 June 2010

I had a very good appointment with the consultant today. He spent 50 minutes explaining everything that will be happening. I will have a bone scan on Monday, a PICC line fitted on Tuesday afternoon(this is a tube fitted into my vein to put the drugs in and to take blood from), MRI scan Wednesday and then start chemo on Thursday. So a packed week. Following the consultant appointment we went to see the oncology department and to have blood taken. We met a lovely nurse who was very helpful.

We went back to Joy and Matts for lunch and enjoyed the sunshine in their lovely garden.
I spent the afternoon with a lovely friend who is travelling a similar journey. What a joy it is to have her as my travelling companion.

I am now exhausted but glad the chemo is to start soon.
Thank you for all your thoughts and prayers.
I see the consultant today. I am grateful for the sunny morning and that Jesus comes with me holding my hand. He promises to never leave me and he doesn't. Hopefully I will post later and let you know how I get on.

I am getting ready for chemo - I have books, knitting, sewing, and a sick bucket and bags coming in the post. I have a lovely pair of sun loungers for the garden so do come and join me when you can. I love company.

Wednesday, 2 June 2010

Sorry the date on the blog is confusing people I will try and sort it out. I wrote the last post this morning 2nd June. I see the consultant tomorrow 3rd June at 9.10. Appointment will take about an hour. We are having trouble with our internet at the moment so don't panic if you hear nothing from me. Technology is wonderful when it works but very frustrating when it doesn't!

I have had a lovely day today with a friend in Reading. We sat in her beautiful garden enjoying the sunshine and chatting. I couldn't quite believe that we were in the middle of Reading yet it seemed so peaceful. This afternoon another friend came and we put the world to rights!

Chloe has had her scan today and all fine. We are very grateful for that and hoping that all her symptoms continue to stay away.
Good shopping yesterday we managed to get most things we needed. Lovely time with Ben. I bought some sewing and knitting things ready for the yuckier days to come.
I will be glad when I have seen the consultant tomorrow and I know the plan and we can get on with it. Not very good at waiting!
Looking forward to seeing friends today and my girlie coming home - yippee.
Wow just realised it is June already where did May go?

Tuesday, 1 June 2010

I had a quiet day yesterday - just right.
I emailed friends and had lots of replies. I am so grateful for everyone's support.
It is lovely to hear peoples news and to know that life goes on all around me while I feel a bit like I am in a bubble. So if you have a moment do email and let me know about your days.

I feel a bit like I am in limbo at the moment - just waiting. I will be glad to be getting on with the treatment although it is good to have some time to get your head around it all.

Today is school trousers day. Poor Ben has been wearing trousers which are too small for him so we are off to buy more. I am looking forward to spending time with him on our own.

Josh went back yesterday after a lovely weekend with us. Chloe comes tomorrow. How wonderful to have such supportive children. They are a joy to us.