What a beautiful day it was today - how lovely to see the sunshine. After all the rain and grey days it is wonderful to feel the sun on our faces again.
Thank you for your messages. I am ok. I began the azathioprine on Saturday morning and then spent most of the day in bed feeling very woozy and sick. So we decided for me to try taking it in the evenings so I sleep through most of the wooziness. This has worked well and I am tolerating the drug well, with few side effects. I had a rheumatology appointment at the beginning of the week and saw my consultant. He confirmed that the scleroderma had returned and that I now have calcinosis ( little lumps of deposited calcium) on one of my fingers. He is concerned about the amount of damage I now have in my fingers and has referred me to an occupational therapist who may suggest that I need to wear splints on my hands. Hopefully I will be able to tolerate the new drug as we increase the dose and that should stop the damage. I am going to have an MRI scan of my hand and wrist which will be interesting. So the plan now is to have a blood test tomorrow to check that my bone marrow is coping with the drug and then if that is ok I will increase the drug on Saturday. With weekly blood tests hopefully we would catch any changes in my blood levels. I return to the hospital in a few weeks and then we will increase the drug again. I will be so glad when this is all sorted and I can get on with life. The last 3 months have been quite a struggle and I feel detached from ordinary life.
All being well Paul and I are going to London on Saturday to see Jeeves and Wooster. I am really looking forward to that.
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