I am sorry this is just going to be a short post just telling you the new plan as so many are asking me. I am feeling absolutely exhausted after waiting an hour and half to see the consultant. My chair wasn't very comfy and I hadn't taken a cushion for my back.
My blood tests came back this morning and were not too bad at all. My calcium is back to normal - 2.37, my hb is 12.3 after being 7.6 and the only one that is a bit concerning is my kidney function at 16 from 26 because I have gone back onto my blood pressure tablets- I will discuss that with my GP tomorrow when we see her.
The new plan is to have another go at denosumab next Friday with weekly blood tests and extra ones if I start to feel more unwell. The only way of knowing if I can tolerate it is to do it again - with lots of extra calcium and vitamin d. The difficult bit is to keep the calcium down when I am being so sick.
I will have a CT scan and an ultrasound scan on 27th November and from that we will then decide the next plan. He suggested today that if I am unable to take denosumab then he would be keen to give me the drug which is used to accompany the Extemestane. Unfortunately that comes with many side effects which I would need to cope with, but would be better than the chemo choice. He is keen for me to remember that most of my seconadries are in the bones and that there are many, many different ways of treating those now. I love that he explains to us why he is making the choices and that we could ask questions at any time.
We were pleasantly surprised that Paul managed to find a space to park so that he could come with me. He likes to hear the same information as I do and ask the questions that he has on his mind. We are a partnership after all.
Papageno also had a visit to the vets for a routine injection. He is never very impressed but doesn't make a lot of fuss. Today the vet removed the top of the basket and gave him his injection in the box. He didn't even miaow. He is a star!
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