Wednesday, 8 September 2010

Having another sick day today- ho hum! Just when I think it is getting better it starts again. Eating is still very difficult mainly due to the yucky taste and sore mouth. I am not eating very much at all. However it is only 1 week since chemo so hopefully it will start to get a bit better soon.

I spent a lovely 2 hours with Ben at dialysis yesterday. He beat me twice at Chinese Chequers having just learnt it - I put it down to my dialysis brain! I also spent a lovely hour with my friend catching up on her news. We learnt how to feel the 'thrill' in my arm which is like a strange buzzing feeling as the blood rushes through the new join. Very weird! As long as I can feel this the fistula is working. I also had a visit from 2 lovely medical students who had been sent by the renal consultant to look at the scleroderma in my hands and to find out what else had been happening to me. They asked lots of questions and took a good history. At the end they asked if they could send their friends! So I think I will be seeing a few medical students. It's kinda nice to be helping them and I am hoping there are other people helping Chloe. She continues with her week of introductions to placements. She is aware that she has a huge advantage having spent a year working in a hospital. Today they will be learning about blood taking which she can already do.

We are to have a full house again at the weekend. Chloe is coming home to go to a party with Ed and Josh is coming home to go to Reading match - how yummy!

Ben has reluctantly gone back to school today. He is not looking forward to this GCSE year. No singing this morning - oh dear. I will miss his singing and his morning chats.

My week of hospital visits continues this week with an ultrasound and mammogram now booked for Friday. Then next Tuesday we will visit oncologist after dialysis to come up with the next plan.

Today brings a 'nothing' day. This is good as the week has been busy so far. I am hoping (energy and arm allowing) to do some tidying and try and catch up on the washing. I am missing school and wish I was there. Hopefully I will be able to pop in next week - blood tests allowing!

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