Sunday, 5 June 2011

Yesterdays shopping trip went well. We managed to kit Ben out for the wedding and for school - just shoes to sort out. Also we managed to get some summer things too. It was so lovely to spend time with him. Hopefully we will do more when his exams are over. Dialysis was yuck - my BP dropped almost as soon as I started and I also had chest pain. In the end they hardly took any fluid off - could be because of the hot weather. We have started to discuss me needling myself - slightly scary. I managed to watch as the nurse needled me yesterday and hopefully I will try soon.

I am to have my Tesio line taken out on Monday at 1.00 as long as my bloods are ok. It seems amazing that I will then be line free. It means I will be able to have a shower after a year of no showers and go swimming. Something I can't wait to do even though I didn't used to go swimming very much before but once you have been told you can't all you want to do is go!!! I will need to get a new swimming costume and a new prosthesis that doesn't hold water. However with my low haemoglobin I am not sure that I will be able to swim very far. But still it will be lovely to be able to go.

I am in need of a lift back from the hospital tomorrow. It will be at about 2.30 unfortunately I won't know the exact time as it will depend how long it takes for me to stop bleeding!!! Always a movable event! Please let me know if you can help. Thank you!

Today I plan a quiet day before my busy day tomorrow. I have physio followed by coffee with a friend and then my Tesio line out.

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