I saw a really lovely rheumatologist today - who was very pleased to meet me. He had heard about me in meetings and was pleased to meet me in person. I felt a bit like a celebrity! As ever he was very interested in the connections between my diseases and which was responsible for what. He was happy to say that my mixed connective tissue disease seems to remain stable. We discussed the various aches and pains that I have and he suggested which were due to the disease and which were probably due to the drug I take to stop the cancer returning. I just need to have an echo of my heart and a lung function test to make sure that they are also stable. He also wanted to put in his pennyworth in about my blood pressure and asked me to increase one of my drugs straight away. His view was that swollen ankles can be put up with but feeling foggy wasn't ok. A man after my own heart! Talking about hearts - he listened to my heart for quite a while and then listened again and then sat and thought for a minute before saying 'have you got a fistula? he had heard a swishing when listening to my heart but then couldn't hear it where you would normally hear a fistula. He was pleased to hear that the fistula had been closed off which would explain what he was hearing. All in all a good meeting.
Tomorrow I am off to NEC to the Christmas show with Kitty - excited to see lots of new ideas.
Might see you there Anne - amongst all the thousands of other people! x
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