Friday, 6 August 2010

I am feeling today that I would like a break from being ill. Just a few days when my days are not ruled by illness and treatment. A few days to tidy my house, go shopping, do the ironing, pack for my boy, cook meals etc...... All things that at the moment I am unable to do, all normal everyday Mummy stuff. I think this is a reflection of the fact that I am feeling better than I have for a long time (due to blood transfusion) but still not well enough to do these things. I am sure many Mums are now saying make the most of it but it is amazing that when these things are taken away how much you want to be able to do them. I am so grateful to Paul that he is holding us altogether and keeping the house running.

Today holds many things. A visit from a friend with plans to learn how to Iris fold, a visit from our lovely vicar and a trip to the hairdressers with the guinea pig! Maybe by tomorrow I will be the proud owner of a new head of hair. If it goes well I will post pictures.


Yesterdays dialysis went well. I am now less cold throughout the treatment, maybe due to the transfusion, so I was able to use my hands instead of having to keep them under the covers. Chloe and I played battle ships ( haven't played this since the boys were little), dominoes and tried to play backgammon. Mmmmmm I had forgotten the rules and we couldn't understand the instructions so we are going to look this up. We also completed some quizzes sent to us by Matt's mum. They were great fun. I had for gotten how competitive my quiet girlie is!

The dietician visited and said everything I wanted him to! Although my phosphate levels are now high the main priority is to keep my weight stable. So forget low fat, forget no sugar - go for it! So now cream and butter are the order of the day. He has also given me some renal drinks to try which should help when I am being sick. So hopefully I will not fade away!

We are wondering if there is anyone around to pick me up from dialysis tomorrow afternoon (Saturday). Paul is off to London again and can take me to dialysis but is unable to bring me home.
We would need picking up sometime between 4 and 5.




1 comment:

  1. It must be so frustrating for you Anne - wanting to do the normal home stuff and not having the energy. Perhaps, as you say, it's a good sign that you are feeling more yourself. Hope so. Glad the dietician was so helpful - sounds quite perfect. x

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