I have just looked back on my posts from the beginning when I was first diagnosed and feel amazed by the journey I have been on. My hands have been firmly grasped by the creator of the universe and he hasn't let me go. I so appreciate all of you coming on this journey with me and am grateful for your prayers, visits, emails, cards, letters, scarves, hats, cream teas, flowers, blog posts, postcards, cakes, meals, phone calls, craft ideas, texts etc...... You fill my life with so many good things. Thank you!
Yesterday I managed dialysis on my own for the first time. Paul came and joined me for the last 45 minutes. I watched a film on the laptop which ran out of batteries 15 minutes before the end of the film - ho hum. I continued with my patchwork ( nurses concerned I might hurt myself sewing mmmmmmmmmmm)and read for ages.
I managed to forget an appointment with my rheumatology consultant so he kindly came to me at the end of dialysis. He is very pleased with my progress and reminded me that it is possible that the chemo may cause the mixed connective tissue disease to remain in remission after I have finished and it may never return. That would be wonderful. My skin is much less tight than it has been and the blood tests which show I have an autoimmune disease are now normal. I will see him when I finish chemo and we will then discuss whether I need to go back on methotrexate.
Today I am going to have coffee with a friend and a visit to GP to update my drugs etc..... Maybe I will fit in a bit of tidying too. Chloe comes home from France today so I am looking forward to seeing her. Ben plans to do some baking - this usually results in some very bright cakes and a chaotic kitchen!
Another interesting post Anne. Enjoy your coffee with a friend - I'm just off for afternoon with 3 of mine. Always a delight. Good news on the connective tissue disease front. Now that would be good news. Enjoy your tidying and the bright cakes. x
ReplyDeletesorry that should say afternoon tea!
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