Thursday, 3 November 2011

I arrived at the hospital with mixed emotions today, for 16 months it has been my second 'home'. The staff and patients have been my fellow companions on my journey and I will miss them. It is also a place that I feel safe. However my journey is taking a new turn.

I had my blood test at 8am and saw my morning companions. It was good to be able to chat with them and let them know what was happening. They are all so pleased for me and so understand my amazement. They also know first hand the change this will make to my life. I was sad to say goodbye. It was also the last time I will use my fistula and I will go back to the struggle of finding a vein.

I returned this afternoon to see the consultant who was all smiles. She is delighted with my blood results which remain stable. We discussed what happens now. I am to have one more blood test in a week - yes you heard right a whole week until I need to go back. I will then be passed to the Kidney Care Team who will take over my care. One of the nurses came to see me this afternoon to explain about a drug I now need to inject myself with which has to be delivered to our home. She was lovely and again said what a surprise it is that I have recovered after all this time. Because this is almost unheard of they have no way of knowing if this is temporary or will be for ever. Their advice is to make the most of it now and live a day at a time. Sounds familiar!!! This is how I have been living for the last year! I will continue to treasure each day and make the most of it. Although I can't help thinking of the possibilities of holidays!! The other great news is she has increased my fluid intake again. I feel slightly scared by that as I so don't want to fill up with fluid but it should help my kidneys so I will slowly increase to the new amount of 1 1/2 litres. That sounds so much more than 750mls. Wow!

My life has changed so quickly.

3 comments:

  1. How amazing, Anne, enjoy the moments and days, much love, Fiona xx

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  2. Can't quite believe I'm reading all this, BUT I AM!! How must you be feeling? "enjoy the moments" as Fiona says - couldn't say anything better. Love to you Sylvia x x

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  3. Thank you ladies - Sylvia it is so amazing isn't it. We know that God can do amazing things but when he does we are surprised!
    Fiona I am enjoying the moments!
    A xxx

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