Sunday, 15 December 2013

Home and lists!

Lovely day at home yesterday - so glad to be home. I am making lists of my lists on my new iPad! Thankfully I had done quite a bit of  internet shopping before I went to hospital, which arrived while I was in. So this week we will finish off what we can and leave what we can't. It is going to be a Christmas of compromises to make it work. I am so grateful for the internet which allows me to sit here and order food and presents without moving from my bed! I am also really grateful for my  own little elves who are helping. 

I have taken the first of my new tablets - it is called hydroxychloroquine (plaquenil). Hoping that this will do the job without side effects. It takes about 3 months to work so I am glad we are getting on with it. My hands and feet are quite sore. At the moment I am avoiding bugs as I don't think I could cope very well with anything else! So not hugging or going too near anyone! (Apart from my family who are not allowed to get bugs!!!!!) 

Chloe returns to Kent today having been here for the last week. This has not been how she planned to spend her week off but she has been such a blessing. Tomorrow she starts on the acute medical unit for the next 2 weeks. We are celebrating Christmas with her and Ed next weekend before she starts 9 days on the trot. 

I am still feeling exhausted but I guess it is going to take a while to recover. Little steps again! I am wondering if I will ever learn patience! I do think I am beginning to learn contentment - not struggling for what might have been but content with right here and now - glad for a here and now! We have so much to be thankful for and we have so many blessings every day. Maybe we need time to stop and take note of all we have and to reflect on how little others have, especially at this time of year. 

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