My needling went well yesterday. The least painful yet. I had a visit from the fistula nurse who checked it all and feels happy that everything is going well. The pressure was checked again and all is fine. So we are on the right track. On Thursday I will have a new nurse needle me as my nurse is on leave. This will tell whether the tracks are now established. The renal consultant also came and decided that she thinks that the ECG is showing damage from my blood pressure. We are going to try new tablets and see what effect that has. It is difficult to know as I still can only have my blood pressure taken in my leg. Unfortunately the damage is now done and can't be undone but we can limit any more damage. i did ask her if I could reduce my time but she wasn't keen saying that 4 hours is best - ho hum!
I have just had a phone call from the hospital to say that there has been a problem with the chemo drug. When it was made up yesterday they detected a small particle of rubber in the tube. This made it unusable. They had no more of the drug to make up so they then had to search the country for it. Eventually they found some in Stockport where it has been made up and is being couriered to Royal Berks today. Wow! I feel privileged that they have put so much effort into sorting this out so that I can have the drug today. All things in his hands.
I am in need of a lift back from the hospital tomorrow evening. It will be at about 7pm. If anyone can help out that would be wonderful.
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