Tuesday, 22 March 2011


So here we go next journey starts. The funding has been approved for the chemo and all being well I should start next Wednesday 29th March. This has to be approved by RBH pharmacy as this drug has never been given at Royal Berks. I am so glad to be getting on with it. It means that I will have 5 weeks after last chemo before Josh's wedding. The likely side effects are sickness, hair loss, diarrohea, nerve pain in hands and feet, damage to finger nails and toenails (possible loss of nails) sore mouth and nasty taste etc..... mmm nice!! All should be treatable and I can have a decreased dose if I can't tolerate the side effects. So in 3 months we will be done.

On a slightly concerning note I had an ECG today to prepare for my annual review with the renal consultant and it shows an heart abnormality. We are not sure what this means and I will ask to discuss it with the consultant on Thursday. I did ask the oncologist and he suggested it could show that I have thicker heart muscles which could be as a result of the anaemia. It looks likely that I will need more tests and a possible referral to a cardiologist. We haven't visited that department yet so that will be interesting. Please be praying that the solution to this is simple - not sure I can cope with much more at the moment!

On another note I am still looking for a lift to Royal Berks on Saturday if anyone is around. Thank you.

2 comments:

  1. That's great news Anne:) sorry we are away this Sat so can't offer to help. Hey sometimes our children have to take the caring role it's great that they care:) x

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  2. Good news about the funding Anne - and finished before the wedding. Praying about the heart situation - sure you do feel you have more than enough to cope with. x x

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