Great news from my renal consultant today - if I can come off my epo (injection which tells my body to make red blood cells) I won't need to go to the renal clinic any more! Wow! I would then only go back if I had any renal problems - my GP would refer me back. So I will begin reducing my epo this week. So March might be my last ever renal appointment. That is amazing news as they had assumed that I would need to be seen by a renal team for the rest of my life but my kidneys are so stable that she felt I could continue with the other care I have only going back if I had problems again. 

Unfortunately she couldn't explain my lung function tests as she hadn't got them. This was disappointing but means I will have to get in touch and possibly see a rheumatologist. I will wait until I have had my echo on my heart and then be in touch with them. She did make me feel like I was a nuisance for asking about that despite being told I would be given the results by her! 

We discussed my blood pressure tablets and she reluctantly agreed to let me stay on the ones I am on. My blood pressure was the lowest it has ever been in clinic today so I think that helped. So stable blood pressure and stable kidneys - fantastic! That's a great Christmas present. Just need to find out about my lungs! 

Off to house-group Christmas meal this evening - lovely.