Yesterdays dialysis was yuck. I went in with low blood pressure and it dropped during dialysis so I ended up lying with my head very low for 2 hours. It was very busy in the dialysis unit and I felt very much like a 'patient' rather than a person. Hopefully it will be better on Saturday. On the plus side my new lines worked very well and meant it was much easier to move about during dialysis. There is now a lot of discussion about the tablets I am taking for the blood pressure which involved 3 phone conversations with nurses and drs last night. We now have a temporary plan until I see the Drs to discuss. In the mean time Chloe is practising her medicine on me with our home BP machine.
We are just coming to terms with the changes to my diet as a result of being on dialysis. I can only have 750ml of fluid in a day. This sounds ok until you add up all the fluid there is in food. Not at all sure how to measure the fluid in a tomato!!! I also have to be careful of the levels of phosphorous and potassium I eat. This leads to quite a change in my diet although they do encourage all things in moderation.
We keep chatting to my kidneys ( named Flopsy and Mospey) in the hope that they will remember what they are supposed to be doing. It is possible that they will spring into life at anytime.
I am looking more and more like a chicken with a 'bad feather day' as my hair falls out. Thinking it is nearly time for a visit to the hair dressers to have it shaved. I think today will be my first day in a head scarf as I have quite a few visitors booked in to see me. I am sure they don't mind what I look like but I would prefer to look less chicken like and more person like. I am really looking forward to a day with friends and no hospitals.
No way are you will you ever be a chicken Anne, always a "GROOVY CHICK"!!!! ;o)
ReplyDeleteJust wondering how much water, phospherous and stuff is in chocolate and do you need a top up yet?
Lots of love honey, hope it goes better tomorrow
Claire xxxxx